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#4443504 - 10/12/18 10:58 PM Re: News and Prayers Needed [Re: Airdrop01]  
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great post Don..Glad you are enjoying days like these and sure to be something the kids will remember ..Best wishes !!


Russ
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#4447912 - 11/10/18 02:36 PM Re: News and Prayers Needed [Re: Airdrop01]  
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Sorry for the long delay in updates. Still hanging. I was able to go this week to Washington State U for a college visit with my 17 year old. He wants to do forestry and conservation science and that is a great place for it.

Jack had a great visit. He’s not positive and both his mom and I would like him closer but I told him over and over it is his life and he has to live it for the glory of God. I think he’s going to go there but we will see. Everyone was so friendly. He said “it’s like Kansas except with hills and forests!”

I had a bit of a spill Wednesday. I was fine until I stupidly spent 20 minutes standing talking to the Hertz lady at 10pm at night which was midnight my time. She had a port and I was encouraging her and when doing so, I got light headed and fainted. I hit my head, have a small cut, and went right down. I got up, sat in a chair that was there for according to Jack, less than 5 minutes during which he said I made a noise and then blacked out. Then I woke up and felt a million times better.

I have no idea what happened but I’ve felt much better since then. I was praying the Rosary that night at the hotel and I had a vision or thoughts of Paul (Saul) getting knocked off his horse. I have no idea if I got yet another miracle or not then but I sure feel better.

Next week is another chemo poisoning. I get blood work and maybe a scan or two.

Keep praying and rest assured I pray for all of you every single day:

God bless you all!!!!

Please forgive typos if any. It’s like 14 degrees here this morningt, meaning my hands are super numb along with my feet and nose!!!


"For I know the plans that I have for you," declares the Lord, "plans for welfare and not for calamity to give you a future and a hope." Jeremiah 29:11

Blessed are you when people insult you and persecute you, and falsely say all kinds of evil against you because of Me. Matthew 5:11

Indeed we call blessed those who have persevered. You have heard of the perseverance of Job, and you have seen the purpose of the Lord, because “the Lord is compassionate and merciful. James 5:11
#4447928 - 11/10/18 04:50 PM Re: News and Prayers Needed [Re: Airdrop01]  
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LB4LB Offline
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Maybe you are dehydrated. Have you had an electrolyte panel blood test lately ? I have had a serious problem with low Potassium ever since I got sick. I know the "light headed" feeling all too well. Just a guess. Still wishing you the best of luck.


"Not everything you read on the Internet is true", Abraham Lincoln
#4447941 - 11/10/18 05:40 PM Re: News and Prayers Needed [Re: Airdrop01]  
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oldgrognard Offline
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Hang in there Airdrop.

Keep your faith. Miracles happen.

https://sacramento.cbslocal.com/2018/11/09/lodi-second-chance-brain-tumor/


Good people sleep peaceably in their beds at night only because rough men stand ready to do violence on their behalf.

Someday your life will flash in front of your eyes. Make sure it is worth watching.
#4448557 - 11/13/18 10:25 PM Re: News and Prayers Needed [Re: Airdrop01]  
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Real quick update: I haven’t seen the labs from today yet.

But, the doc took me off of the oxalaplatin and that has made today great. I can still taste today!!!!!!!

I took a 3 hour nap when I got home from chemo so I just woke up. But little things: water tastes good. I had a snack which was pretty good. I fixed our thermostat which makes me feel useful (going from what we all do (did for me) to nothing is not fun so little fixes I can do make me feel useful!)

I’ll tell y’all about the labs when I know. I’m set for a CT after Thanksgiving and then a doc appointment so we can nap out the options and plan going forward.

Today is a great day. I’m rejoicing!!!


"For I know the plans that I have for you," declares the Lord, "plans for welfare and not for calamity to give you a future and a hope." Jeremiah 29:11

Blessed are you when people insult you and persecute you, and falsely say all kinds of evil against you because of Me. Matthew 5:11

Indeed we call blessed those who have persevered. You have heard of the perseverance of Job, and you have seen the purpose of the Lord, because “the Lord is compassionate and merciful. James 5:11
#4448562 - 11/13/18 10:59 PM Re: News and Prayers Needed [Re: Airdrop01]  
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Truly something to rejoice !


Good people sleep peaceably in their beds at night only because rough men stand ready to do violence on their behalf.

Someday your life will flash in front of your eyes. Make sure it is worth watching.
#4448565 - 11/13/18 11:22 PM Re: News and Prayers Needed [Re: Airdrop01]  
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F4UDash4 Online cool
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Great news Airdrop! God is good!

Last edited by F4UDash4; 11/13/18 11:23 PM.

“Together, let us take up the challenge to reawaken America's religious and moral heart, recognizing that a deep and abiding faith in God is the rock upon which this great Nation was founded.” - Ronald Reagan, May 4, 1982
#4448570 - 11/13/18 11:40 PM Re: News and Prayers Needed [Re: Airdrop01]  
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THX-1138 Offline
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Hello Don,

I still have you in our prayers and will do so until you get better. You are not alone, I am with you and your family. May you continue the fight in faith.

Deus vult!


Domestic Robotics - www.DomesRO.com

#4448607 - 11/14/18 03:52 AM Re: News and Prayers Needed [Re: Airdrop01]  
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LB4LB Offline
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That Oxalipatin is some nasty stuff. Maybe they can give you a little break and then lower the dosage. It's hard to hydrate when water tastes like acid. Keep up the good fight.


"Not everything you read on the Internet is true", Abraham Lincoln
#4451895 - 12/05/18 01:27 AM Re: News and Prayers Needed [Re: Airdrop01]  
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Good evening, all. I haven't posted for the past couple of weeks just because I've not had much to report in the way of positive things. I today ate three meals (not huge meals but meals) for the first time in probably 3 weeks. I will be honest, of course, I have had some hard days recently. The weight mentally of the "perpetual" chemo is just hard to handle sometimes. However, I'm amazed at what faith has done and how when it gets really hard, I inevitably get to a day like today, where I'm feeling great.

The CT I had showed stability. Still metastatic but stable. No new organs and no new growths. One tumor shrunk from the prior scan months ago by 1mm and one was 1mm bigger. I've done enough of that in my career that of course that can be (and the doc agreed) just a difference in the imaging, software or radiologist reading. He was really happy.

I have a PET scan this Friday 12/7. Let's hope it's not a day to live in infamy by vitue of the scan!! smile

I get chemo again (and forever as things stand now) every other week with the next round next week (12/11 - 13). But thankfully no more oxalaplatin, which is just terrible stuff. I am still on FU5 forever. I am now getting IV fluids as well on Thursdays which helps because the taste still isn't there and it makes it a challenge to drink enough water every day. However, I discovered that flavored milk and just whole white milk goes down really well now. We have a home delivery of milk from a local farm every week, and we are going through probably 4 gallons a week of the stuff. I just finished putting out the bottles for the fellow to pick up tomorrow when he brings us more!

I'm coaching my 11 year old girl's basketball team again. They're not very good so far but they are a joy and they all give me hugs and we pray for whatever they want and the beginning and end of each practice. We practice on Friday afternoons for 90 minutes and although I'm not able to do the drills mostly, they listen so well and a lot of times I can stand or even sit and direct them, getting up once in a while to show them things. It's a CYO team so not ultra competitive or anything, which I LOVE. They lost their first game last week 11-10 (yeah, 5th grade girls aren't scoring juggernauts!)

Laura is hanging in there. She was afraid I was "giving up" having felt so bad but we talk and pray so much, she knows that is not the case and was so happy that today went so well.

We are going to Pittsburg, KS tomorrow to visit my daughter at Pitt State. She's in a chorale concert and we will get there to see that at 11:30 and drive back to Lenexa afterwards.

Jack is doing well too. I think I mentioned he really loved Wazzu, especially the fact that he can do all the outdoor camping and hiking and backpacking, kayaking, fishing, rafting, hunting he wants all within an hour. He still hasn't taken the ACT for his junior year but he's probably based upon what he has already going to end up with a 32-33 or so and was worried his mom was pushing him to do something other than forestry type stuff but I've told him it's his life, and he has to do what he wants for the glory of God which means not to take a job for the money or because "that's what kids with that score do." I'm really proud that he's such his own person that he has confidence to stand for what he wants to do (which is not work in an office/cubicle every day).

Anyway, I feel GREAT today. Every day is different, but I am so grateful for today. I prayed so hard last night I was near despair...like "why have you forsaken me" type stuff....which even Jesus felt obviously.... and I woke up feeling great.

God bless you all. Thank you for the prayers and please keep them coming. I will keep you posted when I find out about the PET scan!!

Love to you all!!!!


"For I know the plans that I have for you," declares the Lord, "plans for welfare and not for calamity to give you a future and a hope." Jeremiah 29:11

Blessed are you when people insult you and persecute you, and falsely say all kinds of evil against you because of Me. Matthew 5:11

Indeed we call blessed those who have persevered. You have heard of the perseverance of Job, and you have seen the purpose of the Lord, because “the Lord is compassionate and merciful. James 5:11
#4451909 - 12/05/18 08:09 AM Re: News and Prayers Needed [Re: Airdrop01]  
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Thanks for the update, I will keep you in my prayers.


Keep Calm and Check Canopy

There are no ex-paratroopers, only ones off jump status

Learn Economics at:
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Carthago delenda est
#4451938 - 12/05/18 01:03 PM Re: News and Prayers Needed [Re: Airdrop01]  
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Great news Don. I think of you all the time.


"I have but one lamp by which my feet are guided, and that is the lamp of experience. I know no way of judging of the future but by the past."
Patrick Henry 1775

Let them eat cheap Ice Cream!
The former queen of San Francisco

"There's a sucker born every minute."
Phineas Taylor Barnum

#4451950 - 12/05/18 03:23 PM Re: News and Prayers Needed [Re: Airdrop01]  
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Thank you for the update Airdrop. You are a constant reminder to me that we cannot take anything for granted and that we need to appreciate every day we have.


“Whoever fights monsters should see to it that in the process he does not become a monster. And if you gaze long enough into an abyss, the abyss will gaze back into you.”
#4451954 - 12/05/18 04:22 PM Re: News and Prayers Needed [Re: Airdrop01]  
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Amen, PM.

After making an initial comment, I mostly sit on the sidelines in these threads and let those who are better equipped (having greater maturity and in this case, faith in a higher power) provide encouragement and support. But I'm sure there are many of us, while staying mostly silent, really appreciate the updates and responses.

Keeping fighting the good fight, Airdrop.



The rusty wire that holds the cork that keeps the anger in
Gives way and suddenly it’s day again
The sun is in the east
Even though the day is done
Two suns in the sunset, hmph
Could be the human race is run
#4452937 - 12/12/18 05:08 AM Re: News and Prayers Needed [Re: Airdrop01]  
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Y’all: Get this;

The PET scan showed “dramatic “ improvement. Lymph nodes not getting worse but better. No new tumors. Still in my spine and still metastatic and terminal ( but we all are terminal!).

The doc said today there was no sign of tumor at the original site, at the junction at the stomach and esophagus! He even uttered the words “you’re not curable or operable but this is pretty close to what I call remission even though you have to do the chemo forever.”

I’ve still got perpetual chemo. But this was a great day!

Side effects are brutal. No taste. 12 of 14 days usually. I’ve got really bad neuropathy so it made me go from 80 wpm typing to about 10. It makes me lose balance as I can’t feel my feet at all. I went to bed a few weeks ago unknowingly wearing my shoes!! 😂Naps are pretty regular twice a day sadly. I lose my balance and fall some, faint and can’t do more than 5 minuets standing without a break. Chemo brain is ridiculous. Every other sentence I utter is garbled! And yet I am SO BLESSED BY GOD AND YOUR LOVE AND PRAYERS AND SUPPORT. I feel SO HAPPY today.

I love and truly pray for each of you daily!!!!

Y’all are true blessings. Thank you!!!


"For I know the plans that I have for you," declares the Lord, "plans for welfare and not for calamity to give you a future and a hope." Jeremiah 29:11

Blessed are you when people insult you and persecute you, and falsely say all kinds of evil against you because of Me. Matthew 5:11

Indeed we call blessed those who have persevered. You have heard of the perseverance of Job, and you have seen the purpose of the Lord, because “the Lord is compassionate and merciful. James 5:11
#4452938 - 12/12/18 05:25 AM Re: News and Prayers Needed [Re: Airdrop01]  
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LB4LB Offline
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Great news ! I am amazed everyday at the stories I hear about people being able to handle so much more than they ever thought they could. I know it is easy to feel like you are pushing a ten ton rock up a mile high mountain, but keep pushing !!!

The chemo brain and nephropathy are rough. Don't hold back on telling your doctor exactly what is going on with that. I still have some lingering effects. I keep doing weird things like putting the peanut butter in the refrigerator and forgetting my train of thought mid-sentence. Sometimes it is best to just have a good laugh at it. It does get better.

As always, I wish you continued strength and courage.


Last edited by LB4LB; 12/12/18 05:26 AM.

"Not everything you read on the Internet is true", Abraham Lincoln
#4452941 - 12/12/18 06:32 AM Re: News and Prayers Needed [Re: Airdrop01]  
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Glad to hear that. I will keep praying for you.


Keep Calm and Check Canopy

There are no ex-paratroopers, only ones off jump status

Learn Economics at:
http://www.mises.org
Carthago delenda est
#4452965 - 12/12/18 12:07 PM Re: News and Prayers Needed [Re: Airdrop01]  
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F4UDash4 Online cool
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Ask your doctor about vitamin B6 for peripheral neuropathy. I've been taking it, 100mg, twice daily since my chemo ended almost 18 months ago and my hands are almost 100% normal, though my feet are still pretty numb. Of course with you still taking chemo I wouldn't expect the same results but it might make some worthwhile difference.


Last edited by F4UDash4; 12/12/18 12:23 PM. Reason: dosage

“Together, let us take up the challenge to reawaken America's religious and moral heart, recognizing that a deep and abiding faith in God is the rock upon which this great Nation was founded.” - Ronald Reagan, May 4, 1982
#4452968 - 12/12/18 12:12 PM Re: News and Prayers Needed [Re: Airdrop01]  
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I have prayed for you Airdrop. Hopefully your health will continue to improve. Keep up the good struggle, both physically and spiritually. You are an inspiration to us.


Good people sleep peaceably in their beds at night only because rough men stand ready to do violence on their behalf.

Someday your life will flash in front of your eyes. Make sure it is worth watching.
#4452979 - 12/12/18 01:22 PM Re: News and Prayers Needed [Re: Airdrop01]  
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Nixer Offline
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Such great news Don.

Thanks for sharing this with us.


"I have but one lamp by which my feet are guided, and that is the lamp of experience. I know no way of judging of the future but by the past."
Patrick Henry 1775

Let them eat cheap Ice Cream!
The former queen of San Francisco

"There's a sucker born every minute."
Phineas Taylor Barnum

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